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11/2005

Everyday Life With ALS: A Practical Guide

If you have ALS, or care for someone who does, this practical guide will answer many of your questions about equipment, therapies and accessibility that arise over the course of the disease.

 
 
 
 
  Chp. 1 - Equipment for Daily Living
  Chp. 2 - Saving Energy
  Chp. 3 - Home Modifications
  Chp. 4 - Mobility & Support Equipment
  Chp. 5 - Respiratory Issues
  Chp. 6 - Speech & Communication
  Chp. 7 - Transfers
  Chp. 8 - Exercise
  Chp. 9 - Exercise Instructions
  Chp. 10 - Resources

Chapter 2 - Saving Energy

Chris Rice working on computer.

In addition to the technological possibilities available to help you live your everyday life, simpler techniques of planning and organizing activities can help.

Principles of Energy Conservation

Avoid Rushing

  • Preplan your work, and schedule rest periods.

  • Spread heavy and light tasks throughout the day.

  • Set priorities and eliminate unnecessary tasks.

Avoid Unnecessary Motion

  • Sit instead of standing for any task that may last longer than 5 minutes.

  • Avoid holding or lifting heavy objects by sliding or using a wheeled cart.

  • Avoid reaching and bending by arranging your work area within normal reach.

  • Apply for a “disabled” parking permit early in the disease process.

Arrange Your Work Center

  • Place supplies and equipment at the point of first use.

  • Live simply, avoiding unnecessary cluttering of items.

  • Use modern labor-saving equipment. For example, use a food processor for chopping or cutting.

  • Use good posture to prevent fatigue by keeping your trunk muscles in their best biomechanical position for function.

Use Proper Working Conditions

  • Adjust work areas to a proper height.

  • Use adequate ventilation.

  • Use good lighting.

  • Work in a relaxed manner, for example, with music.

  • Wear comfortable clothing.

 


 
 
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