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11/2005

Everyday Life With ALS: A Practical Guide

If you have ALS, or care for someone who does, this practical guide will answer many of your questions about equipment, therapies and accessibility that arise over the course of the disease.

 
 
 
 
  Chp. 1 - Equipment for Daily Living
  Chp. 2 - Saving Energy
  Chp. 3 - Home Modifications
  Chp. 4 - Mobility & Support Equipment
  Chp. 5 - Respiratory Issues
  Chp. 6 - Speech & Communication
  Chp. 7 - Transfers
  Chp. 8 - Exercise
  Chp. 9 - Exercise Instructions
  Chp. 10 - Resources

Chapter 6 - Speech & Communication

A woman learning to use communication technology

Not only the muscles that produce breathing but also those that produce speech will likely be affected by ALS. An astonishing array of assistive technology is now available to help you continue to communicate with others despite the effects of the disease.

Augmentative, Alternative Communication (AAC) Devices

AAC Basics

While there’s a rapidly growing number of choices in today’s market, most communication devices follow the same basic idea: The user inputs the information about what he or she wants to say, and the machine “speaks” it. Methods of input differ, however, and AAC systems differ by design, size and features.

Today’s AAC devices include dedicated machines designed solely for generating speech or written text, and software programs for personal computers.

Specialized computer software can turn a personal computer into a speech generator. EZ Keys by WordsPlus is a popular program that offers a variety of access options, input methods (such as using a mouse alternative) and keystroke-saving features such as word prediction. Most people install the programs on laptop computers for added portability.

Variety of Systems

Most communication devices are designed to be portable and durable. They’re generally the size of a laptop or smaller, with handheld or palmtop devices a recent innovation. But beware: Though handheld or palm computers may be attractive, their small size may soon make them unmanageable to a person with ALS.

In addition to the type of machine, AAC users must also choose a type of system:

 

MDA Publications Department
© 2005, Muscular Dystrophy Association

This document presents some brief selections from MDA's 145-page book, Everyday Life With ALS: A Practical Guide (see a list of the complete contents).

The book is available through MDA offices to anyone with ALS who’s registered for MDA services. Copies are offered to others for $15, with a CD-ROM for $10 (see order online form).

 

  • symbol-based, in which the user selects from categories of symbols and pictures to form a sentence

  • text-based, in which the user inputs text, codes or abbreviations that are converted into speech

  • text-to-speech machines, in which you can type a sentence and the computer “speaks it”

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