ALSN readers like reading about real people facing the same challenges they face. Please share your experience and wisdom related to the topics listed below. Your contribution will help others living with ALS.

To respond to any of the topics below, send us your name, age, neuromuscular diagnosis, phone number, e-mail address and a short explanation. This information will be kept confidential, and we'll get in touch with you about an interview.  E-mail publications@mdausa.org or write to MDA Publications, 3300 E. Sunrise Dr., Tucson, AZ 85718 .

TOPICS:

• Do you have problems with personal care attendants – including family members?

• Tips for low-tech/low cost aids for daily living

• Traveling with portable lifts and portable respiratory devices

• Tips for battling depression

• Dealing with anger, meanness and emotional abuse, either from a caregiver or from the person with ALS

• Experiences with voice amplification devices

• Creative ways to raise funds for equipment that’s not covered by insurance

• Talking to children about an ALS diagnosis

• Have you remodeled your home for greater accessibility? We’re looking for examples of small-, medium- and large-cost remodeling projects.

• Tips for dealing with panic attacks and anxiety

• Have you found an online support system for caregivers?

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