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ALS: Anyone’s
  L
ife Story”
May 2008
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MDA’s ALS Division introduces you to 31 people  - one each day for the month of May - who are living with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). 

This series was inspired by Augie Nieto, ALS Division Co-Chairperson, who says that since his ALS diagnosis, instead of striving for success, his goal each day is to be significant.

In their own words, otherwise “ordinary” people describe the impact of living with a progressive, incurable and deadly disease. But their stories also tell how ALS has brought new significance to their lives in ways that you might not expect. 

ALS can become anyone’s life story. Please join MDA’s world-leading effort to stop it. 

Jerry Lewis Open
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Ramon Antelo
Ramon Antelo

Name: Ramon Antelo

Hometown, State: Hialeah, FL

Age: 62

Family:
Children: Ramon and Robert
Grandchildren: Ramon Alejandro, Esteban, Natalie, Robert Jr.
Parents: Ramon, Sr. and Raquel Antelo

Hobbies/Interests:
Fishing and hunting

Date of ALS diagnosis:
September 2003

Tell us about your life before ALS:
An owner of an Auto Parts for close to 30 years. Enjoyed the fishing in the Florida Keys where I have a home. Also enjoyed hunting trips in Wyoming, Montana, Texas, Georgia and Florida. Always was the “handyman” of the whole family.

Tell us about your life with ALS:
Many life adjustments have been made, from depending on an electric wheelchair (where the grandkids ride along) to home remodeling. A much slower pace, with my caretaker being my lovely wife who does everything for me. We take one day at a time.

Tell us how ALS has brought new significance to any aspect of your life - family, attitude, hobbies/passions, career, etc.:
With an extremely close family, we have many family outings and continued visits to the house keep me happy. I continue to be the “family handyman,” but now with suggestions and advice on how to do it right! The family still carries me out to the beach and has made a floating chair in which they all hold me and I can still enjoy the ocean.

 
 
 
 
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