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ALS: Anyone’s
  L
ife Story”
May 2007
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MDA’s ALS Division introduces you to 31 people  - one each day for the month of May - who are living with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s disease). 

This series was inspired by Augie Nieto, ALS Division Co-Chairperson, who says that since his ALS diagnosis, instead of striving for success, his goal each day is to be significant.

In their own words, otherwise “ordinary” people describe the impact of living with a progressive, incurable and deadly disease. But their stories also tell how ALS has brought new significance to their lives in ways that you might not expect. 

ALS can become anyone’s life story. Please join MDA’s world-leading effort to stop it. 

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Pamela Rayer

Name: Pamela Rayer

City, State: Goddard, Kansas

Age: 46

Family:
Spouse - Randy
Daughters – Tiffany, Crystal, Ashley and April

Hobbies/Interests: Scrabble, stained glass artist, horseback riding, skiing and cooking.

Date of ALS diagnosis: January 5, 2001

Life before ALS: My husband and I own a stained glass business.  I did all the bookwork, taught classes and designed windows.  We also have four daughters.

Life with ALS: I have a fantastic support group consisting of family, friends and church.  I still continue to manage our home with much outside help.  ALS has brought my husband and I closer, not only to each other, but also to God.

How has ALS brought new significance to your life: Little things, meticulous details, are not as important as I once thought.  ALS has calmed my spirit and has focused my attention towards God’s will and not my own.  I do not dwell on what I can not do, but I thank God for what I can.  I have not lost my passion to survive.  My hope is strong.  I enjoy encouraging others in similar situations.

 
 
 
 
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